The Foundation has three goals:
1. Promote and support research on the causes of the most severe forms of rheumatism
2. Encourage the discovery and evaluation of innovative therapies for these diseases
3. Help disseminate information about these diseases, their prevention and how to improve the quality of life of those affected, via communication campaigns and training sessions (in partnership with INSERM, the French National Medical Research Institute).
The Arthritis Fondation Courtin, based in Paris, has been the largest private fundraising initiative in the field of severe rheumatism since 2006 and has contributed to tremendous advances in rheumatology research in France.
One particularly debilitating form of rheumatism is lupus, which affects young women in particular. It can result not only in widespread organ damage, but also in a painful inflammatory skin disease, Cutaneous lupus erythematosus (CLE), which can lead to significant scarring, depigmentation and alopecia.
With the support of TFWA Care, Arthritis Fondation Courtin is to embark on a therapeutic patient education programme called Lupus Make-up Lessons, designed to improve the health and quality of life of patients suffering from CLE.
Project in 2015
TFWA Care began its support of the Arthritis Fondation Courtin in 2014, through the development of the new Lupus Make-up Lessons programme, which saw the development of educational interactive material, including videos and online presentations, designed to offer practical advice on managing the effects of CLE.
The programme has involved the development of educational interactive material, including videos and online presentations, designed to offer practical advice on managing the effects of CLE.
Phase II of the project was completed in 2015, and saw the development of a dedicated website aimed at developing support for patients through the effective dissemination of the educational initiatives developed in phase I. The objective is for the website to have a real positive impact on the quality of life of women suffering from this debilitating condition.